A recent study conducted by the University of Cambridge and King’s College London has unveiled the startling prevalence of concealed mental health symptoms among patients with autoimmune diseases, emphasizing the need for immediate mental health support in clinical settings.
The study, published in the journal Rheumatology, highlights that over 50% of individuals with autoimmune disorders, such as lupus and rheumatoid arthritis, experience mental health issues like depression and anxiety. Despite this, a significant number of patients rarely, if ever, discuss these symptoms with medical professionals.
The research surveyed 1,853 patients with systemic autoimmune rheumatic diseases (SARDs) and included responses from 289 clinicians, predominantly rheumatologists, psychiatrists, and neurologists. The study examined 30 symptoms, including fatigue, hallucinations, anxiety, and depression.
Key findings of the study include:
High Prevalence: Among SARD patients, the study reported high rates of mental health symptoms. For instance, 55% experienced depression, 57% reported anxiety, 89% suffered from severe fatigue, and 70% encountered cognitive dysfunction.
Contrasting Patient-Clinician Perspectives: The mental health symptoms disclosed by patients sharply contrasted with clinicians’ estimates. Notably, three times as many lupus patients reported experiencing suicidal thoughts compared to clinicians’ estimates (47% versus 15%).
Limited Communication: Patients often hesitated to report mental health issues to clinicians, fearing stigmatization. Even when they did disclose their symptoms, these were frequently not documented accurately or at all.
The study underscores the necessity for clinicians to routinely inquire about their patients’ mental well-being and ensure that patients feel supported in discussing mental health concerns.
Dr. Tom Pollak from King’s College London emphasized the significance of this study, saying, “We have known for some time that having a systemic autoimmune disease can negatively affect one’s mental health, but this study paints a startling picture of the breadth and impact of these symptoms. Everyone working in healthcare with these patients should routinely ask about mental well-being, and patients should be supported to speak up without fear of judgment. No patient should suffer in silence.”
The study also highlights the urgent need for integrated mental health support and interdisciplinary collaboration in patient care. Only 8% of rheumatology departments in England and Wales have a psychologist embedded in their teams, despite the study’s findings regarding the prevalence and impact of mental health symptoms.
The Rt Hon the Lord Blunkett emphasized the importance of additional funding and holistic care for patients, urging the government to take action to provide the necessary support.
This study serves as a clarion call for improved recognition and support of mental health issues among autoimmune disease patients, emphasizing the need for comprehensive healthcare that addresses both mental and physical well-being.
